A mother’s journey to save her son’s sight

By Susan-Elizabeth Littlefield - bio | email

COLUMBIA, SC (WIS) - A 6 month old baby boy who lives in Columbia suffers from a rare violent form of Epilepsy.

His name is Jackson Patterson he's the Patterson's first child and he is very sick.

You've heard motherhood is one of the toughest jobs in the world well wait till you hear what life has been like for Jackson's mom.

According to his mother, Amanda Patterson, life started relatively quickly and smoothly on January 11.

"I had the breeziest birth of any human ever," said Amanda.  "He just popped right out.  I didn't even know when to push."

The pain came two months later, "I cut the light on and his legs were board straight and his eyes were deviated to the left and he was just making the noise that he was making, no parent should have to hear," said Amanda. "I just knew that I was going to lose my baby that night."

Jackson was having a seizure and then he went into a coma.  And then he came out.

After 42 days in the Children's Hospital at Palmetto Health Richland, Jackson left, but the seizures never left him.

From March until June the Patterson's didn't know what the real problem was, until late June when doctors diagnosed him  with a rare and violent form of epilepsy called "Infantile Spasms" or "IS."

In addition to his diagnosis Jackson was also losing his vision.

"I noticed it first," said Amanda. "I said for about a week, I told my mom, my husband, "he can't see me, Mom."

The Patterson's say hope is to head to Cincinnati and meet with an expert who may be able to nail down a cause.

"I've put my eggs all in one basket and they're in Ohio," Amanda added.

Amanda says once they get to Cincinnati she'll have a mother, son chat with Jackson.

"I just tell him I love him and he's going to be okay and I'm fighting for him," said Amanda. "I'm fighting for him."

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