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Family desperately trying to raise money for son with rare tumor - Live5News.com | Charleston, SC | News, Weather, Sports

Family desperately trying to raise money for son with rare tumor

Source: Live 5 Source: Live 5
MONCKS CORNER, SC (WCSC) -

A family in Moncks Corner is facing a difficult ultimatum.

The Brumbaugh family is desperately trying to raise money for their son, Nathan.

Nathan Brumbaugh has been given six months to two years to live.

Nathan, 13, was diagnosed with a rare brain tumor, a DIPG tumor is what it's called. Nathan was diagnosed in August of this year. Diffuse intrinsic pontine gliomas (DIPG) tumors are highly aggressive and difficult to treat. These tumors are found in an area of the brain stem called the pons, which controls many of the body’s most vital functions such as breathing, vision, speech, motor skills, blood pressure, and heart rate.

The Brumbaugh family needs to raise approximately $30,000 to help their son.

Nathan's tumor is the size of a golf ball and has "finger like" branches that is wrapped around his spinal cord, according to the family.

Nathan has been in treatment at MUSC for six weeks, but the treatment is not working.

"The tumor has gotten bigger, doctor said they can do another round of radiation but it could hurt him more." Nathan's mother said.

Doctors at MUSC aren't able to operate on the tumor, because of the size and difficulty. Right now, the family is hoping that the tumor will shrink.

"After radiation and chemotherapy, that's all MUSC offers...they can't operate, because it's inoperable." Tommy Brumbaugh, Nathan's dad, said.

"MUSC has done everything they can, but they can't help us anymore... that's why we need to get to Texas." Tonya Brumbaugh said,

At this time Nathan's mom, Tonya Brumbaugh, has had to take off of work because Nathan cannot be alone.

The Brumbaugh family is raising money in order to take Nathan to a different hospital for a new procedure. This procedure is not approved by the FDA yet, but it's Nathan's only chance at living to see the New Year.

Because the new treatment is not approved by the FDA, insurance will not cover it. The port and service that Nathan needs, will cost about $17,000 for each treatment.

Nathan needs a special port that will be inserted directly into his brain. The port is suppose to help attack the tumor from the inside out.

The clinic is in Houston, Texas, and they are willing to try new treatment, according to the family.

"With the new treatment, Nathan will be able to live for 20 plus years." Tonya said. "Parents need to pay attention to their children, and have them checked."

Since seeing the story posted on news sites and social media, an anonymous donor has stepped forward to match the family's current amount of donations. The donor has offered to give the family a gracious gift of $13,000. The family is still raising money to make the journey to Texas.

To donate to the family, visit https://www.gofundme.com/2nbq4syw.

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